A Hidden Medical Scandal Unveiled: The Fight for Justice Over a Pregnancy Drug Linked to Cancer
Imagine being prescribed a medication meant to protect your pregnancy, only to discover decades later that it caused lifelong health issues for your child. This is the devastating reality for thousands of women and their families who were exposed to Diethylstilbestrol (DES), a synthetic hormone now dubbed 'the hidden thalidomide.' But here's where it gets even more shocking: despite known risks, DES was prescribed to an estimated 300,000 women in the UK between the 1930s and 1980s, and its legacy of harm continues to unfold.
A year-long investigation by ITV News has exposed the staggering scale of this medical scandal, prompting calls for a public inquiry and compensation for the victims. And this is the part most people miss: the drug, originally prescribed to prevent miscarriage, has been linked to rare cancers, infertility, and other severe health problems in the children of those who took it. Now, hundreds of women are demanding answers and justice.
The Story Behind the Scandal
DES, or Stilbestrol, was widely prescribed by the NHS until its dangers became undeniable. Here’s the controversial part: despite warnings about its sinister side effects, health authorities failed to act promptly, leaving countless families to suffer in silence. Mary Stuart, 83, is one such mother. In 1966, she was prescribed DES tablets after multiple miscarriages. Her daughter, Helen Scanlan, now 58, was born the following year, but her life has been marked by chronic pain, a misshapen womb, and cervical cancer. Helen’s story is heartbreaking: 'I’m devastated that I haven’t had a family of my own. I feel like I’ve missed out a lot.'
Mary, burdened by guilt, wishes she had never taken the drug. 'I’ve always thought I caused Helen’s problems,' she told ITV News. Her story is not unique. Over 300 victims have joined DES Justice UK, a campaign group fighting for recognition, compensation, and accountability. But here’s the question that lingers: why did it take so long for the medical community and regulators to acknowledge the harm caused by DES?
The Push for Accountability
In a significant development, Health Secretary Wes Streeting has asked NHS England to ensure GPs are aware of DES’s impact and to provide additional screening for those at risk. However, campaigners argue this is just the beginning. They are calling for a statutory public inquiry, an information campaign, and a compensation fund. Here’s where it gets controversial: the Medicines and Healthcare products Regulatory Agency (MHRA) admitted last month that it misled the public for 25 years about when DES was withdrawn. The drug was not banned for use in pregnancy until the 1980s, over a decade after its cancer risks were known. This revelation has sparked outrage and demands for transparency.
The Human Cost and the Fight Ahead
The stories of DES survivors are both harrowing and inspiring. Jan Hall, 75, believes her mother’s exposure to DES during three pregnancies contributed to her death from breast cancer at just 32. 'This is potentially one of the biggest pharmaceutical scandals in British history,' said Labour MP Jessica Toale, who has championed the cause. But here’s the challenge: many healthcare professionals remain unaware of DES and its risks. 'GPs are literally googling ITV News coverage to find out what this is,' said MP Sharon Hodgson, highlighting the urgent need for education and awareness.
What’s Next?
As the campaign gains momentum, the question remains: will the government take meaningful action? Here’s a thought-provoking question for you: Should pharmaceutical companies and regulators be held more accountable for long-term harm caused by medications? Share your thoughts in the comments below.
If you or someone you know has been affected by DES, you’re not alone. Resources and support are available, and your story could help bring about change. Email socialaffairs@itv.com to share your experience. Together, we can demand justice and ensure this hidden scandal is never forgotten.
